It is estimated that more than 20,000 people in Australia have some form of neuromuscular condition.
The Hospital Research Foundation Group is committed to helping these families access the care and support they need to achieve positive outcomes for their child.
Muscular Dystrophy Support
Providing a grant to leading SA service provider I Can Jump Puddles to help them provide early intervention and family support for clients under 65 years old with Muscular Dystrophy and neuromuscular conditions, who are languishing in the gap that exists between diagnosis and the availability of NDIS funding.
Investigating the genetic markers for neuromuscular disease to help guide care for families and prevent complications such as heart and respiratory weakness.